Epidermolysis bullosa (EB) is a group of rare genetic skin and tissue disorders that cause extreme skin fragility and separation of the skin and mucosae from the underlying tissues after trauma, creating painful blistering that leads to chronic skin wounds.
This difficult set of diseases demands knowledge, experience and continuing education for healthcare professionals who work with EB. Learn more about EB in our professional education materials.
EB-CLINET aims to connect medical professionals working with EB patients. This facilitates collaboration and communication and thus helps to improve patient care. On their website they offer:
- Recordings of their Online Seminars on different EB-related topics held by specialists in their respective fields
- Access to relevant literature, tools and other resources like the Nursing Forum for EB care
- Dates and information on interesting training events