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DEBRA International Conference 2017

Dystrophic Epidermolysis Bullosa Research Association (DEBRA) International Conference 2017

We’re heading to New Zealand for the annual Dystrophic Epidermolysis Bullosa Research Association (DEBRA) International Conference, 24-26 November – in support of DEBRA International and its tireless work to improve the quality of life of children and adults suffering from EB.

DEBRA International is a worldwide network of national groups that work on behalf of people affected by the debilitating and sometimes fatal genetic skin disorder epidermolysis bullosa (EB).

There is currently no cure for EB. It causes painful internal mucosal blistering and external cutaneous blistering, likened to third-degree burns. Some sufferers endure up to three hours of dressing changes per day and care-providing is often a 24-hour cycle, including medication administered throughout the night.

Delegates from around the world will attend the International Conference. Speakers will share knowledge and discuss patients, families, available support, research, treatment, resources and collaborations.

The programme will also include forums for patients, physicians, nurses and dieticians to voice experiences and share achievements in treatment and care.

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